Kevin Sinfield CBE and team are raising money for Motor Neurone Disease Association, Leeds Hospitals Charity, Irish Motor Neurone Disease Association, My Name'5 Doddie Foundation, MND Scotland and The Darby Rimmer MND Foundation this week by Running Home for Christmas.
The challenge started on Sunday 1 December with a run from Liverpool to Wre...
Remembering Euan MacDonald: A legacy of accessibility and courage
We recently said goodbye to our founder, and friend, Euan MacDonald, who sadly passed away on 21 August after living with Motor Neuron Disease (MND) for over two decades.
It’s clear from the outpouring of love and respect received that Euan made a profound impact on disabled people, their families, carers, and friends, and in the field of MND...
Global MND Awareness Day 2024
Our founder, Euan MacDonald, has been living with Motor Neuron Disease for twenty years - he was just 29 when he was diagnosed. Since then, he's worked tirelessly to improve the lives of people living with MND and related conditions, whilst also raising awareness of the importance of disabled access information. Eu...
Euan MacDonald Centre for Research’s MND-SMART eliminates two drugs from trials
Our founder Euan set up the Euan MacDonald Centre in 2006, and we’re very proud that the centre facilitates the largest UK MND drug trial, MND-SMART.
MND-SMART was designed to test several drugs that might improve outcomes for people living with MND rapidly and efficiently. The team has opened 20 sites across the UK to make sure as many people...
New funding announcement for the Euan MacDonald Centre’s MND clinical trial
We were thrilled to hear the news last week that MND Scotland and the MND Association have announced £2. 5M funding for the Euan MacDonald Centre for Motor Neuron Disease Research clinical trial, MND-SMART, which was set up by our founder Euan!
The Euan MacDonald Centre’s MND-SMART trial is the largest clinical trial for Motor Neuron Disease in...
An adventurer, rugby fan and whisky enthusiast, Euan MacDonald MBE is co-founder of disabled access charity Euan’s Guide, the Euan MacDonald Centre for MND Research, and SpeakUnique.
Following Euan’s Motor Neuron Disease diagnosis in 2003, Euan and his father Donald resolved to do whatever they could to ensure MND research was brought to the fo...
Euan MacDonald Centre for MND Research Launches Landmark Trial
What a start to the new decade! The Euan MacDonald Centre for MND Research recently announced that a new UK-wide clinical trial that aims to find treatments that will slow, stop or reverse the progression of motor neurone disease (MND). The trial, MND-SMART, will include as many people with the condition as possible and aims to find effective m...
From research to rugby and reviews, what came after the Euan MacDonald Centre for MND?
What a start to October! Euan’s Guide is delighted with the news that Doddie Weir has helped to raise a further £250,000 towards vital research at the Euan MacDonald Centre. It’s anticipated that the money raised by the My Name’5 Doddie Foundation will reduce the time it takes for new treatments to become available to those who have Motor Neuro...
June 21st is Motor Neurone Disease (MND) Awareness Day and it's a cause very close to my heart. My diagnosis 14 years ago opened my eyes to a new world - one I was unaware of. I began to encounter barriers, challenges and hurdles (both physical and mental) that seemed insurmountable.
Life with MND can be complex. Getting out the door involve...
Despite the fundraising success of the viral Ice Bucket Challenge, Motor Neurone Disease (MND) remains a ‘relatively unknown disease’. That’s why every June, and all year round, new awareness campaigns are launched to help people gain a better understanding of what is actually a group diseases described as MND.
Euan was diagnosed with MND shor...
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